Today’s Living Well with Heart Failure conference at the Golden Jubilee Conference Hotel brought together patients, carers, clinicians, and researchers for a day of insight, shared experience, and support.
Organised by Heart Failure Hub Scotland and supported by our incredible charity partners, The ALLIANCE Scotland, Pumping Marvellous Foundation, British Heart Foundation Scotland, Chest Heart & Stroke Scotland, and Cardiomyopathy UK, the event explored what it truly means to live well with heart failure.
What’s new in heart failure?
The morning sessions focused on the latest updates in heart failure treatment and innovation, including Scotland’s impressive research landscape and the expanding use of virtual care. A key highlight was the research presented by clinicians from across the country, showcasing the benefits of getting involved in heart failure studies and how this is actively shaping future care. Heart failure nurses shared powerful presentations on how they are actively reshaping care pathways to better meet the needs of both patients and the healthcare system.
Realistic medicine and tips for interactions with healthcare professionals
Later, attendees heard powerful sessions on self-management, realistic medicine, and how to get the most out of consultations. Realistic Medicine supports heart failure care by promoting personalised, evidence-based decisions that align with patients’ values and goals. Whether your appointment is in person or virtual, being prepared can help you feel more confident and get the most out of your consultation.
Top Tips: Making the Most of Your Consultation
Before your appointment:
- Know what’s normal for you and when to seek help
- Write down questions in advance
- Bring a friend, carer or relative
During your consultation:
- Be honest about symptoms and concerns; it helps your care
- Take notes
- Ask if you don’t understand something
Virtual Appointments: Quick Checklist
- Confirm time and date
- Charge your device and check your connection
- Get help with the tech if needed
- Find a quiet, private space
- Prepare your questions
- Ask for a summary at the end
5 key questions to ask:
- Do I really need this test/treatment?
- What are the risks or benefits?
- What are the side effects?
- Are there simpler or safer options?
- What happens if I do nothing?
Psychological impact of living with heart failure
Afternoon discussions turned to the emotional and psychological impact of heart failure, with input from clinical psychologists and people with lived experience, a reminder that managing heart failure is about much more than just physical symptoms.
We closed the day with an open and honest expert panel Q&A, giving attendees the chance to voice their questions, concerns, and experiences.
Key themes raised in feedback included:
- The benefits of seeing heart failure specialists
- Ongoing challenges with delayed diagnosis
- How and when people are told they have heart failure
- The importance of clear, compassionate communication
- The challenge a lack of data presents to improving services
- The critical need to understand the cause of heart failure and access the appropriate investigations
- The psychological toll of diagnosis and living with the condition
It’s been such an inspiring and empowering day; seeing patients, carers, and professionals come together to share experiences and learn from each other truly reflects what the Heart Failure Hub is all about. The energy in the room was incredible, and the feedback shows just how valuable these conversations are for improving care and support across Scotland.
A heartfelt thank you to all who attended, participated, and partnered with us to make this event such a success. Together, we are working to improve care, share knowledge, and support one another in living well with heart failure.
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