Patient Information

Supporting people living with heart failure and their families.

This hub offers valuable links to information and support networks to help you navigate the journey with heart failure.

Discover educational materials, support groups, and self-care tips tailored to enhance understanding and improve quality of life. Some of these resources are from other countries with different health services. If you have questions or concerns about your symptoms or treatments, please speak with your healthcare professional.

What to expect when you have heart failure

From first signs and symptoms, we can help you understand the process of a heart failure diagnosis and support you through every stage

ESC Guidelines for heart failure - What patients need to know

This guide for patients from the European Society of Cardiology aims to provide an overview of the latest evidence-based recommendations for the diagnosis and treatment of heart failure.

It will help patients to understand the:

General resources

Resources for patients and families to help understand and live with heart failure

Living well with heart failure - Richard's story

 

We’ve linked to three videos from Heart Failure Matters where Richard, who lives with heart failure, shares his experiences and advice.

Understanding and managing heart failure – Richard talks about the strategies he uses to understand his condition and manage daily life with heart failure.

The patient’s voice in healthcare – He explains why it’s important for people with heart failure to be involved in shaping guidelines and educating healthcare professionals, making sure the patient’s voice is heard

Quality of life matters – In his final video, Richard highlights why healthcare teams should focus not just on how long people live with heart failure, but also on making sure they have a good quality of life.

These videos offer useful insights and practical advice from someone who understands what it’s like to live with heart failure.

In conversation: heart failure and devices

In this video, David Ramsay speaks with Dr Omar Fersia about his experience of living with heart failure, including the role of devices in his care. It offers a personal and informative insight into life with heart failure from both a patient and clinical perspective.

Please note: This video features a personal account and is provided for information and educational purposes only. Heart Failure Hub Scotland does not endorse or promote any specific organisation, product, or device mentioned. Everyone’s experience of heart failure is different. Please speak to your own healthcare team for advice tailored to your individual circumstances.

Through collaboration and exchange of ideas, the Hub aims to equip NHS Boards to strengthen the delivery of consistent excellence in the field of Heart Failure management
Hub Lead